We are raising money for medical expenses and secondary expenses Gracie's parents will incur for her treatment of Neuro Blastoma. Please show your love and support for the Ferluge family by donating.
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We want to start by saying a BIG Thank you to each of you for your Prayers, Love, Support, and Generosity for the last 15 months. This has not only built a solid foundation for our family enduring this extremely painful trial, but it has created so many deeper relationships with you all that will last a lifetime.
Our family is very proud to announce that Gracie was declared NED (No Evidence of Disease) on 10-25-2021!!!
After 15 months of Battle with Stage 4 High Risk Neuroblastoma, 12 Rounds of Chemotherapy, 3 Tumor Resection Surgeries, 7 rounds of Immunotherapy, 14 Proton Beam Radiation treatments, countless blood transfusions, and excruciating side effects along the way, she KNOCKED OUT CANCER!!!!
The next steps will entail her going through a Neuroblastoma Vaccine Trial that MSK invented. Early data in this trial has been very promising. We will be learning more about this trial as the days continue and as always keep everyone informed on her progress with it.
We will Forever be Grateful to God for Healing her Body and for blessing her doctors and nurses with the knowledge to heal. We have Full Faith in Him that he will keep her clear for the rest of her life! She is a living miracle and her strength and Grace persevered.
As many of you have recently been made aware, Gracie Ferluge (5), the youngest daughter of Dina and Craig Ferluge, has been diagnosed with Stage 4 Neuroblastoma. While this is a rare and difficult diagnosis for anyone to receive, Gracie is a fighter and a champion at heart. If you have ever met Gracie, you know that her spirit is electric, and she has an energy like no other!
Gracie is being cared for by the nations most experienced physicians with this form of cancer. Of course, winning a battle against cancer, which our little Champion Gracie will do, takes a toll on any family. For the Ferluge family, this fight will take a lot of resources from financial to emotional. Gracie’s current treatment pathway is already underway. She is scheduled to receive several rounds of chemotherapy, multiple surgeries, and several months of radiation therapy coupled with immunotherapy and vaccine therapy that will specifically target the genetic sequence of her cancer. These combined therapies will ensure her body eliminates this disease entirely should it try to rear its ugly head again.
Many of you have asked what you can do to help? For those that don't know Ryan and me... my husband, Ryan, has worked with Craig for the last 13 years and our families have become close friends. Our goal in putting this page together for them is to raise funds to help cover their medical expenses and all the additional financial expenditures they will incur during a prolonged treatment pathway to CURE GRACIE’S CANCER, which no family anticipates or plans ahead for. All funds donated will be automatically deposited to Craig and Dina. As you can imagine, they will spend countless months in the hospital with Gracie. They will also carry the burden to try and maintain some sort of normalcy for their other daughter’s, Siena (8) and Olivia (6), while they manage the bubble around Gracie during chemotherapy treatments. Chemotherapy will weaken Gracie’s immune system and she will be very vulnerable to sickness and infections. With the approaching flu/covid season, Dina and Craig have decided to switch school enrollment for Siena and Olivia to 100% remote learning for 3rd and 1st grades, respectively. To assist with all the above, they have hired a full-time nanny and part-time educational tutor. All monies raised in this campaign will help with medical expenses and the unplanned expenditures outlined above. Any unused funds will be donated to the Band-of-Parents (www.bandofparents.org), which is a grassroots, nonprofit organization that funds innovative research and clinical trials for neuroblastoma, helping increase the survival rate for this childhood cancer.
We are asking first-and-foremost for your love and fervent prayers. If you can help financially, that too. This will be a long road for the Ferluge Family. As of right now, doctors project Gracie’s battle with this disease to last at least 18 months, and possible more. Our goal is to help make that time a little less stressful on them so that they can maintain a semblance of normalcy for their family. We love Craig, Dina, Gracie, Siena, and Olivia as many of you do as well. Their family has had a lasting impact on ours; through their love, generosity, authenticity, and support no matter what the circumstances. We hope that if they have had anywhere near the impact on you and your family as they have had on ours, that you will be compelled to pray and then give if you can.
God bless you-all and the Ferluge Family in this difficult season.
Sincerely,
Michelle and Ryan Barone
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We want to start by saying a BIG Thank you to each of you for your Prayers, Love, Support, and Generosity for the last 15 months. This has not only built a solid foundation for our family enduring this extremely painful trial, but it has created so many deeper relationships with you all that will last a lifetime.
Our family is very proud to announce that Gracie was declared NED (No Evidence of Disease) on 10-25-2021!!!
After 15 months of Battle with Stage 4 High Risk Neuroblastoma, 12 Rounds of Chemotherapy, 3 Tumor Resection Surgeries, 7 rounds of Immunotherapy, 14 Proton Beam Radiation treatments, countless blood transfusions, and excruciating side effects along the way, she KNOCKED OUT CANCER!!!!
The next steps will entail her going through a Neuroblastoma Vaccine Trial that MSK invented. Early data in this trial has been very promising. We will be learning more about this trial as the days continue and as always keep everyone informed on her progress with it.
We will Forever be Grateful to God for Healing her Body and for blessing her doctors and nurses with the knowledge to heal. We have Full Faith in Him that he will keep her clear for the rest of her life! She is a living miracle and her strength and Grace persevered.
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Oct 26